ENGELLİ ÇOCUĞU OLAN EBEVEYNLERİN UMUTSUZLUK DÜZEYLERİNİN BELİRLENMESİ

Author :  

Year-Number: 2019 -97
Yayımlanma Tarihi: 2019-10-02 14:49:05.0
Language : null
Konu : Hemşirelik
Number of pages: 53-67
Mendeley EndNote Alıntı Yap

Abstract

Amaç: Bu çalışma, engelli çocuğa sahip olan ebeveynlerin umutsuzluk düzeylerini belirlemek amacı ile yapılmıştır. Yöntem: Tanımlayıcı türde olan çalışma, Sinop ilinde bulunan özel eğitim merkezlerinde Şubat-Nisan 2016 tarihlerinde yapılmıştır. Örneklem seçimine gidilmeden tüm engelli çocukların ebeveynlerinin tamamına ulaşılması hedeflenmiş, iletişim kurulabilen, katılmaya gönüllü 130 ebeveyn çalışma kapsamına alınmıştır. Veriler, araştırmacılar tarafından hazırlanan anket formu ve Beck Umutsuzluk Ölçeği kullanılarak toplanmıştır. Verilerin hesaplanmasında standart sapma, ortalama, frekans dağılımı, ki-kare testleri kullanılmıştır. Bulgular: Engelli çocukların %44,6’sı kız, %55,4’ü erkektir. Çocukların %23,8^nin zihinsel engeli, %22,3’nin işitme engelli, %20,8’nin yaygın gelişimsel bozukluğu olduğu belirlenmiştir. Ebeveynlerin %31,5’inin engeli olan başka bir çocuğu olduğu ve %48,5’inin engelli çocuğunun geleceğinden umutlu olduğu saptanmıştır. Beck Umutsuzluk Ölçeği toplam puan ortalaması 10,43±2,42 olarak saptanmıştır. Sonuç ve Öneri: Çalışmada engelli çocuğa sahip olan ebeveynlerin umutsuzluk düzeyleri orta derecede bulunmuştur. Engelli çocuğa sahip olan ebeveynlere destekleyici yaklaşımlarda bulunulmasının; ailelerin umut düzeylerine olumlu katkı sağlayacağı düşünülmektedir.

Keywords

Abstract

Objective: This study was conducted with the aim of determining the hopelessness levels of parents who have disabled child. Method: In this descriptive study, the families of children with disabilities who were educated in special education centers. The population of the study consisted of the families of children with disabilities who were educated in special education centers, and the aim was to reach all of the parents of all children with disabilities without being selected, and 130 parents who volunteered to participate in the study were included in the study. Data were collected by using a questionnaire and Beck Hopelessness Scale. Standard deviation, mean, frequency distribution and chi-square tests were used to calculate the data. Findings: In terms of disability, 23.8% of the children were mentally disabled, 22.3% were hearing impaired, and 20.8% were pervasive developmental disorders. 31.5% of parents have another child with disability and there are more. 48.5% of the parents were found to be hopeful about the future of their handicapped children. The mean total score of Beck Hopelessness Scale was found to be 10.43 ± 2.42. Conclusions and Recommendations: In this study, the hopelessness levels of parents with disabilities were found to be mid-level.. Supportive approaches to parents who have a disabled child; it is thought that they will contribute positively to the hope levels of their parents.

Keywords


  • Akandere, M., Acar, M., & Baştuğ, G. (2009). Investigating the hopelessness and life satisfaction levels of the parents with mental disabled child. Selçuk Üniversitesi Sosyal Bilimler Enstitüsü Dergisi, 22, 23–32.

  • Aktekin, E., Bayazıt, B., Çolak, S., & Çolak, T. (2014). Eğitilebilir zihinsel engelli çocukların el becerilerinin gelişimine, kapalı alan aktivitelerinin etkisi. The Journal of Academic Social Science 2(6),469-477.

  • Altay, Ç., & Arıkan, D. (2015). An investigation of depression and desparation levels in parents of subacute sclerosing panencephalitis (SSPE) patients. İzmir Dr. Behçet Uz Çocuk Hast. Dergisi, 5(1), 54–60. https://doi.org/10.5222/buchd.2015.054

  • Avşaroğlu, S., & Gilik, A. (2017). In This research, Hopelessness levels according to some variables and anxiety states of parents who have special needs children were examined. İlköğretim Online, 16(3), 1022–1035. https://doi.org/10.17051/ilkonline.2017.330239

  • Björquist, E., Nordmark, E., & Hallström, I. (2015). Parents’ experiences of health and needs when supporting their adolescents with cerebral palsy during transition to adulthood. Physical &Occupational Therapy in Pediatrics, 1–13. https://doi.org/10.3109/01942638.2015.1101041

  • Burçak, A. D. (2018). The effect of the attack therapy process on the anxiety and hopelessness levels of the parents who have disabled children. Türkiye Bütüncül Psikoterapi Dergisi, 1(1), 193–203.

  • Caicedo, C. (2014). Families with special needs children : family health , functioning , and care burden. Journal of the American Psychiatric Nurses Association, 20(6), 398–407. https://doi.org/10.1177/1078390314561326

  • Çalışır, H., Karabudak, S. S., Karataş, P., Meşealan, İ., & Tosun, A. F. (2018). Family burden and hopelessness levels in mothers of children with cerebral palsy. Dokuz Eylül Üniversitesi Hemşirelik Fakültesi Elektronik Dergisi, 11(2), 147–156.

  • Çatalbaş, M., Manav, G., & Ocakçı, A. F. (2015). Family-oriented nursery approach to despair levels of the parents of children with cardiac disease and down syndrome. Marmara Üniversitesi Sağlık Bilimleri Enstitüsü Dergis, 5(3), 154–161. https://doi.org/10.5455/musbed.20150602011201

  • Durat, G., Atmaca, G. D., Ünsal, A., & Kama, N. (2017). Hopelessness and depression in the families of children with special needs. Osmangazi Journal of Medicine, 49–58. https://doi.org/10.20515/otd.300262

  • Gürhopur, F. D. T., & Dalgıç, A. İ. (2017). Family burden among parents of children with ıntellectual disability. Journal of Psychiatric Nursing, 8(1), 9–16. https://doi.org/10.14744/phd.2017.87609

  • Karadağ, G. (2009). Hardships Undergone by mothers with handicapped children, hopelessness and social support from family. TAF Preventive Medicine Bulletin, 8(4), 315–322.

  • Malm-Buatsi, E., Aston, C. E., Ryan, J., Tao, Y., Palmer, B. W., Kropp, B. P., … Frimberger, D. (2015). Mental health and parenting characteristics of caregivers of children with spina bifida. Journal of Pediatric Urology, 1–7. https://doi.org/10.1016/j.jpurol.2014.09.009

  • Özsoy, S. A., Özkahraman, Ş., & Çallı, F. (2006). Zihinsel engelli çocuk sahibi ailelerin yaşadıkları güçlüklerin incelenmesi. Aile ve Toplum, 3(9), 24–26.

  • Savaşir, I., & Sahın, N. (Editörler) (1997). Bilişsel davranışçı terapilerde değerlendirme:sık kullanılan ölçekler. Türk Psikologlar Derneği Yayınları., Ankara.

  • Sen, E., & Yurtsever, S. (2007). Difficulties experienced by families with disabled children. Journal for Specialist in Pediatric Nursing, 12(4), 238–252.

  • Softa, H. K. (2013). Examınatıon of parental depressıon levels of chıldren wıth dısabılıtıes. Kastamonu Eğitim Dergisi, 21(1), 589–600.

  • Song, C.-S., Chun, B., & Choi, Y. (2015). The influence of fathers ’ parenting participation with disabled children on parenting stress in mothers. Journal of Physical Therapy Science, 27(12), 3825–3828.

  • Tekinalp, B. E., & Akkök, F. (2004). The effects of a coping skills training program on the coping skills , hopelessness , and stress levels of mothers of children with autism. International Journal for the Advancement OfCounselling, 26(3), 257–269.

  • Tercanlı, N., & Demir, V. (2012). The assesment of beck hopelessness scale ın terms of several varıables (the sample of Gümüşhane provınce). Gümüşhane University Journal of Health Sciences, 1(1), 29–40.

  • Tunali, B., & Power, T. G. (2002). Coping by Redefinition : Cognitive Appraisals in Mothers of Children With Autism and Children Without Autism. Journal of Autism and Developmental Disorders, 32(1), 25–34.

  • Tüik. (2011). Özürlülerin Sorun ve Beklentileri Araştırması, 2010. TÜİK. http://www.tuik.gov.tr/PreTablo.do?alt_id=1017. (AD: 03.04.2019).

  • Unicef. (2011). Türkiye' de Çocukların Durumu Raporu. https://abdigm.meb.gov.tr/projeler/ois/egitim/032.pdf. (AD: 03.04.2019).

  • Who. (2011). World Report on Disability. http://www.who.int/disabilities/world_report/2011/report.pdf. (AD: 03.04.2019).

                                                                                                                                                                                                        
  • Article Statistics